Chemo day 2 cycle 3- we’ve had a naughty hour 😂 think she’s super bored wants to play and of course we get the dodgy pumps that don’t charge ffs so need to be plugged in 247…… doing amazing and best of all we have had the results from her MIBG scan - this scan distinguishes where the neuroblastomas are….. apart from her primary main tumour on her left adrenal gland in the abdomen there is only a very tiny spot on her back and less than 5% in her bone marrow….. TODAY IS A GOOD DAY! she still needs all the treatment of course chemo surgery radiotherapy stem cell transplant & immunotherapy plus abroad if needed BUT so happy it hasn’t spread ridiculously…. Smashing this with her cheeky smile and eating of course! Get it down yaaaaaaaa 💛💛💛💛💛💛💛💪💪💪💪💪💪💪💪 Allforgracie Tudor
9th May 2023
First scan after 4 rounds of chemotherapy Gracie’s primary tumour has shrunk!! From 15x10cm to 9x5cm only half way through chemo! We have so many more months of other treatment and surgery but we are taking this win!!!! As always Gracie goes into this as the warrior she is!!!! ✨✨ Allforgracie Tudor Stephen Tudor
26 May 2023
✨✨✨ CYCLE 5 done!!!!✨✨🎗️🎗️🎗️ Allforgracie Tudor Scan results in from bone biopsy and it’s gone from 5% in her bones to 0% this is amazing news
MIBG Scan and Bloods Super long day today. Gracie went for her MIBG scan and had her nasogastric tube re-fitted, as it came out when she was a little sick. She was put under general anaesthesia, as she didn’t react well last time to the sedation they put her under, and they did the scan and NG tube fitting. Two hours later, she woke up with blood in her mouth and nose due to a bigger NG tube being fitted, and she was told they had no small ones. Then she came around and was not good, crying and screaming. Nothing would calm her down, but finally, 2 hours later, she calmed down, and we finally got a bed ready for her chemotherapy. It’s been 2 days with blood and nuclear injections, and today we're just waiting for the chemo to start.
MIBG scan 1st bloods
Chemotherapy 6 Gracie found this one harder, being very tired and pale blood was given 3 days ago and she was also put under general anesthesia dor the MIBG scan so it was a lot for 3 days. She has also had to have platelets as they were low 170
7th cycle of chemotherapy over 3-4 days Gracie has started her 7th chemotherapy today she has done amazing and her strength continues
7th cycle of chemotherapy over 3-4 days
Blood Transfusion Gracie’s bloods went a little low 66 doctors like it 70 or above so she has had her 2nd blood transfusion
Cycle 8 chemotherapy 29th June 2023 Gracie has started her last induction chemotherapy cycle 8 and continues to shine Gracie is neutropenic, not symptomatic mind, happy to go ahead with cycle 8!!!! We had a very in-depth meeting regarding Gracie’s stem cell harvesting & stem cell transplant….. so so clever. LETS GET IT MY GIRL 💛💛💛✨✨🎗️
Bone Marrow Biopsy Gracie has had a bone marrow biopsy her white blood cells was a little low been 71 so they gave her some bloods .
Harvesting stem cells 10/07/2023 After you've had tests to check your general health, the stem cells that will be used for the transplant need to be removed and stored harvest stem cells involves temporarily removing blood from the body, separating out the stem cells, and then returning the blood to the body.
Happy 3Rd birthday to this princess she is amazing strong brave girl with so much love .
3rd MIBG scan and MRI 14/07/2023 scan before surgery we have just been told surgery will be next Wednesday 19/07/2023
19th July 2023 Surgery day Gracie went into theatre at 9:30am and had 8 hour surgery to remove the primary Tumour surgeons was worried they may have to remove the right Kidney but all went to plan and tumour was removed and kidney was fine she is currently in recovery and will be there for the next week or so she remains her amazing self and is awake talking and asking for food . Photo was taken before surgery.
Gracie’s scan image 6x8 tumour before surgery
22/07/2023 Gracie continues to shine with all drains and fluids off she has been standing today and hoping she will drink and start eating again
8/8/23 H I G H DOSE CHEMO As most of you are aware Gracie was randomised to receive the TANDEM double stem cell transplant! Gracie is the first child in Birmingham to be selected for this!!!... so we have officially started part 1... I won't go into the side effects as we are concentrating on being POSITIVE!!! So here we go SMASH IT OUR GIRL
Day +6.... nearly a week since her magic cells where transferred back to her..... the last two days have been hard for Gracie & today she has spiked a temp and got a tummy bug, full isolation 😞 on IV fluids & antibiotics, I know these next few weeks will be very hard for her but again I'm always positive around her trying to make her giggle, but she's not having it 😂 so a very relaxed day Allforgracie Tudor
Day +6
💛💛 Day +7... one week since those yummy cells went back to Gracie..... I don't really want to share a photo of Gracie at the moment it wouldn't be fair or kind to her..... yesterday was a very challenging day for Gracie pops... BUT she is smashing it in typical Gracie way.... hopefully we can swap her to a TPN feed today & a blood transfusion and platelets are needed, another day of lovely rest and snuggles when she wants them..... unfortunately she has got an infection in her lines so she has high dose antibiotics